About Us

Well hey there, stranger.

I’m Sarah. I’m a twenty-six year old sushi addict, book-lover, orthodox Catholic, and mother of two. I started this blog because my kids are cute and say funny shit and, to be honest, I just have to write, because it’s what I do. It’s what I’ve always done. I’m currently living the dream as a stay-at-home mom and a freelance writer. I love making lists, organizing, reading, clipping coupons, marathoning TV on Netflix, writing, and dreaming about being a homeowner. This is a picture from when I was in college and like fifteen pounds lighter but WHATEVER.

This is my adorable husband, Lou. He’s the kind of guy who doesn’t say much, but when he does speak, he’s the funniest guy in the room. We’ve been married since May 2010 but have been inseparable since April 2007. On any given Saturday night you can find us snuggled up on the couch watching Suze Orman and eating ice cream. And smooching. Lou moonlights as an illustrator and is crazy talented. (I’m not ashamed to say that, upon meeting him in college, I had a obsessive crush on him for like a year before I worked up the courage to even say hello. Because, just look at him. Isn’t he dreamy?)

This is my first-born, June. My baby. My sweetest toddler. My little hellion. MY SPAWN. June is two and the funniest person I know. Like me, she suffers from Andy Kaufman syndrome, where she’d rather annoy the hell out of you than be ignored. Junebug loves to make silly faces, talk in weird voices, and tell elaborate stories — anything to entertain. She likes counting pennies, watching Barney, drawing, and eating toast.

Henry is our fourteen-month-old who can’t go five minutes without flashing a big, gummy smile. He’s incredibly content and will hang out on the floor with his toys all day, if you let him (and I do). Henry is laid back, loves people, and always wants to be talked to, kissed, cuddled, and held. He’s just now learning how to wave, and he lights up when you say his name. He’s an absolute joy.

photo-61We learned at a routine ultrasound that Henry has a birth defect called Spina Bifida. Part of his spine failed to close in-utero, so he has some moderate physical challenges such as hydrocephalus, limited mobility, and clubbed feet (which are cuter than regular feet. REAL TALK). He has a lot of doctor appointments and we need to catheterize him a few times a day, but overall his medical needs don’t really have a lot of bearing on our day-to-day lives. Essentially, he’s a normal little boy with a few special needs sprinkled here and there. I’m ridiculously proud of him. My mission with this blog is to encourage other moms who’ve found themselves in Special Needs World, and to show them that having a child with a disability, while devastating, can be an extraordinary blessing. If your baby has been diagnosed with SB,you’re not alone, and you’re stronger than you think. And shoot me an e-mail if you need to talk.

Welcome to our little adventure. Join us.


4 thoughts on “About Us

  1. I stumbled upon your blog today (a friend on FB shared your post from today 5/6/14) and so I started reading your blog. I have not been in your position of having a child that needs extra special attention but I feel compelled to tell you that my husband was. My husband was born with hydrocephalus. He endured 18 brain surgeries, shunt revisions, etc. He endured constantly having to relearn everything that we all take for granted. He went through this all well before they made (and continue to make) the medical strides that they have with shunts, and hydrocephalus. I can tell you that he (and I) are happily married. He successfully holds a full time job, successfully graduated with his degree in college, the whole nine yards. We deal with the day-to-day worry of another shunt failure and another surgery. However, in the meantime, I live in the moment with him and love him every day. I hope this helps you to see that no matter the difficulties he endures, trials he experiences, that life will be full of love and joy and experiences!

  2. I really enjoy reading your blog!! Your sense of humor in the whole mom thing is refreshing and your children are adorable!

  3. Hi there,
    I found your blog through Facebook. Your post “as long as it’s healthy. But what if it’s not” hit very close to home. My daughter is 8 months old and has severe cerebral palsy (spastic quadriplegic). It wasn’t something that was diagnosed in utero, but was instead a result of her traumatic birth. I know intimately the pain and grief you talked about when people make comments about a child’s health being the source of that child’s worth. I am also a Catholic and am learning the lessons of suffering and love in ways similar to you. I just wanted to say that I’ve enjoyed reading your blog, and I’ve felt consoled to know I am not alone in my struggles, joys and sorrows of being a special needs parent. I will remember your family, especially your sweet boy, in my prayers.

    • Thank you so much for commenting! Your daughter is PRECIOUS, btw. I’m looking forward to reading your blog and catching up on her story. It is so nice to know that I’m not the only special needs parent who is learning about the suffering (and the joys!) of being a special needs mommy. It definitely feels isolating, doesn’t it? Your fam is in our prayers as well.

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