What We Talk About When We Talk About Crippling Anxiety (Part 2)

II. Recovery

A nurse was shaking me awake. The procedure was a success. We pulverized the stone. She said. They had inserted a scope up my urethra and did something to the kidney stone — blew it up, or something? — and now it was gone. I would continue to keep passing “shards” of the stone for the next few days, they told me. Sure, okay, I said.

I was groggy from the anesthesia, but I instantly felt better. That I’m-going-to-pee-my-pants feeling was gone. And after I had been wheeled out of recovery and back into my room, a kind nurse helped me wobble over to my “English” toilet and let me pee for the first time in three days.  It stung a little, but that was normal, they told me, because of the scope they had stuck up there. I looked into the toilet and there was blood. Not streaks of blood, not spatters — the entire bowl was dark red.

That’s normal, the nurse told me. I still felt faint. She helped me wobble back into bed and I laid in the dark feeling nauseated from the anesthesia. I threw up a couple times. But I felt lightyears better than I had felt in the past day. I had been in the hospital about 18 hours at that point. The nurse gave me something to put me to sleep. My two friends stayed the night with me in my room, and called my mother every few hours to update her on what was happening. I’m certain that the entire experience, as hellish as it was for me, was way worse for her.

They released me the next day around noon. I was a little sore, still, but the stone had passed, and there was no need for me to be hospitalized any more. I could pee on my own. I still peed blood, but again, they said, it was no big deal. It should taper off in a few days. There was still a lot of it.

In Bangalore, we walked everywhere. Our campus was large and vast, and for some reason there were a lot of wild birds everywhere. The walk from the main gates of the campus back to the girls’ dormitory took maybe fifteen minutes. Getting anywhere on campus, from point A to B, was a fifteen or twenty minute walk. On the walk back from the hospital, my classmates approached me, horrified.

We heard you went to the hospital?! They said. Are you okay?!
Oh, I’m totally fine! I’d say, brushing it off. Toooootally fine. I had a procedure and they blew up my kidney stone like the Death Star and I’m all good now. And I thought I was.

The next day, in my lower back, I got a tingling pain, very slight, in the place where the kidney stone had lodged. Within minutes, it had evolved into an agonizing ache, and in another minute it was so painful I had to lay down on my back and take deep breaths. I was at a mall when this happened. Oh God, I thought, the stone is back. I have no way to get to the hospital. I’m all by myself. I can’t even move. What am I gonna do? 

The pain subsided after a while and I was able to hobble back to my dorm room, terrified. I didn’t know what had just happened, but it felt like an attack. It had come out of nowhere, and was crippling, and I had no idea if it would happen again. I decided to skip class that day, to rest up, in case whatever it was came back.

It came back a lot.

On my way to class, on my way to the dining hall — wherever I was going for the next four or five days, I would randomly get this stabbing pain in my back, and a paralyzing fear would grab me. If I was on my own in the city or on campus, and I had this pain creep up on me, I’d be stranded. I’d have to lay down on my back, or sit on the ground and breathe through it.

Meanwhile, my Indian phone was running out of minutes, and I had to take an auto-rickshaw across town to buy a calling card with more minutes. I couldn’t walk across campus — whenever I walked anywhere, that stabbing pain would come back — so my phone minutes just petered away. My laundry was piling up — and in India, we did all our laundry by hand. Literally. We took it up to the roof, lathered some soap on it, beat it against a rock, and hung it up to dry on a clothesline. It was hard work. I could barely pick up my laundry basket, so the laundry kept piling up. Students at the University bought food at the supermarket across town to keep in their dorms, or ate in the cafeteria at the edge of campus, or both. The few times I had tried to walk to the cafeteria, I had been besieged by the stabbing pain and had high-tailed it back to my dorm room. I mostly ate some leftover biscuits I had been keeping in my room, so I wouldn’t have to leave my dorm. I didn’t change clothes, because I couldn’t do my laundry. I didn’t go to class, because the kidney stone pain might have flared back up. The stones are coming back, I would think, whenever the stabbing back pain would creep up on me, like a pocket knife slowly inching into my back. I’m going to have to go to the hospital again. I’m going to need surgery again. Eventually I couldn’t leave my room. I kept a bag packed next to my bed in case I had to go back to the hospital. I was in a near-constant state of pain or waiting expectantly for the pain to come back. I was a hostage.

Meanwhile, I was still peeing blood.

The hospital had given me a prescription for some medicines when I had left. I had to take the perscription to a pharmacy and have them fill it. I couldn’t tell what it said, because of the handwriting. I managed to decipher some of it and looked it up on Google when I got back to the dorms. One of them was a medicine that made me pee. Another was a painkiller. Another I had no idea. Was I allergic to this medicine? I had no idea. They hadn’t asked if I had medicine allergies. Would it interfere with the meds I was already taking — the anti-malaria pills my doctors had given me back home? Nobody knew. The doctors didn’t ask if I was taking anything else. They didn’t seem to care. Neither did the pharmacy guy — who, by the way, was like, just some fucking dude in a garage. The first time I went to the pharmacy to fill the perscription, it was closed. I came back a few hours later, still closed. The guys outside the garage-like building told me the pharmacist was on his lunch break and to come back later. I did. He was there. No lab coat, just some dude in jeans, with his friends hanging outside his shop, talking on their phones and making jokes. Was this real life?

Here’s a good example of what an Indian pharmacy looks like. (I got this from Google images.) As you can see … it’s just some fucking hole in the wall.  Don’t bother asking the guy who runs this any questions about any of the medications, because he has no clue.

After five or six days of this, still peeing blood and having this random, paralyzing pain, I went back to the emergency room. I was exhausted. Terrified. I was a prisoner. I sobbed to the emergency room physician that I was still peeing blood — a lot of it — and I thought I was still passing stones. They wouldn’t stop. I couldn’t go anywhere, or do anything. I couldn’t function. Or get groceries. I had lost five pounds. I hadn’t been to class.

I couldn’t understand what they were saying, their broken English. They did the Indian head bobble at me — which, if you’ve ever been to India or talked to an Indian person, you know that this head bobble means exactly nothing. It can mean yes, or no, or maybe, or anything, really, it’s just a gesture. I don’t know what that means, I kept telling them. Is that a yes? A no? Do I have kidney stones again?

I can’t believe I found a gif of this.

They did some more x-rays. No stone. I cried and cried. Please just tell me what’s going on, I begged the physician. I literally have no idea what this pain is or when it’s going to sneak up on me next. The physician patted my head and told me I just needed some tea. Then put her hand on my stomach. Then she started to pray. In tongues.

Make no mistake — I’m a big believer in the power of prayer. I have felt it work many, many times. That time, however, was not a time I felt it work. And that was not a time I appreciated being prayed over. Is this real life? I kept thinking. Is she a real physician? Did she just wander off the street and put on a lab coat? I laid there on the gurney and just cried harder.

After she worked her voodoo, they discharged me with more prescriptions. I was passing kidney stone shards, apparently — remnants of the original big-ass kidney stone they had already blown up — and it should be over soon. I should stop peeing blood any day now. It wasn’t and I didn’t.

I filled the perscriptions at the pharmacy when the pharmacist decided to randomly show up (there were no hours of operation, the pharmacist dude just came and went whenever he felt like it). What the hell were these medicines, and what did they do? Hell if I knew. Side effects? No idea. One was a painkiller. I tried to google the rest. No results. I had no information, even from Google, because the only English websites about these medicines were sites like the FDA, which didn’t recognize the names of any meds because they weren’t American medicines. Great.

The next day, I was so nauseated I couldn’t stand up. I made myself puke in my private bathroom in the dorms so I could end my misery, but I was still just as nauseated as before. I couldn’t eat — not that I had groceries anyway. Some friends brought me some strawberries and I puked those up too. I was still peeing blood. A lot of it. Every time I looked in the toilet my heart would start to pound, and I’d get this warm, tingling wave of anxiety all over my body. One day, I just stopped looking. Somehow, I managed to crawl out of bed and I went back to the hospital. There was an on-campus doctor at the university, but he only came every other wednesday (or every wednesday, I don’t remember), so it was either lying on my dorm floor, puking, or back in the hospital, trying to figure out what was going on. So I went back to the hospital.

Oh, said the physician, when I told her I had been severely nauseous. That’s a side-effect of the medication. I’ll give you another medication you can take. 

LOL, I thought. There’s no way I’m taking anything else you give me. I lied and told her I was fine and got the hell out of there. I lied and told her I had stopped peeing blood days ago. Before, my choices were the Indian hospital where nobody knew what they were doing and some freak voodoo bitch was trying to poison me, and my dorm room where I had no clean clothes, no food, and no contact with the outside world since my phone had run out of minutes a week ago. I’m getting out of this hell-hole, I decided. I’m going home.

Immediately, I ambled back to my dorm room and tried to buy a flight home. Lots of websites were blocked at the university for some reason, and I couldn’t access any travel websites. Because terrorism, or something. The next day I went to leave campus and go to an Internet cafe where I could purchase a flight, only to be told that nobody was allowed to leave the campus because there were mobs of people just randomly attacking women all over Bangalore. Is this real life? I called my parents, who had to jump through a bunch of hoops to purchase an international ticket (because again, terrorism, or something), and finally — finally — about ten days after this nightmare had begun, I was getting out of there. I threw everything in my suitcase. I threw out what didn’t fit. I hired a cab and hugged my friends. And I started the 30-hour journey back to Chicago.

What we talk about when we talk about crippling anxiety (Part 1)

I. The Kidney Stone
The thing that spurred my PTSD was a medical event. One day, during a semester studying abroad in southern India, I woke up in the most excruciating pain of my life (transition during labor was a close second). I felt like there was a knife in my back, and for some reason I was sweating, with chills, and retching like I had the flu. I had never experienced anything like it in my life. And it came on so suddenly, I had no idea what to do. For the next few hours, until I finally made it to the hospital and got a shot of morphine (or, you know, whatever they gave me, like I cared at that point), my brain only functioned in a primordial, reptilian state. All I could think was pain, need drugs, need hospital as I paced around the room in agony. The only reason I got to the hospital was because some very kind friends called a driving service and practically carried me out the door.
In India, everything takes like three fucking hours, and is unbelievably inefficient. Need to buy some food? Nobody stands in a line. They just crowd and push each other in one big mob until you shove yourself to the front of the line and yell your order. So too, is protocol in an Indian hospital. When I finally showed up and waded past the mob of people just ambling around the door, I had to fight my way to the front desk and fill out a stack of paperwork that asked about my mother’s maiden name and what my father did for a living. “Can I just get a shot?” I sobbed, probably sounding like a junkie, but in too much agony to care. “Can I fill this out later?” Alas, no. I had to fill out all the paperwork before being seen. And before I had an ultrasound, an MRI, or any kind of test, I had to pay for it up front, in cash. In between trips to the ATM, I ran outside to throw up. The friends who escorted (dragged) me to the hospital filled out the paperwork for me.
So I’m running back and forth between the waiting room and outside, throwing up and in unbelievable pain. I would so much rather throw up in the bathroom because the thirty or forty people outside the entrance just wandering around are staring at me whenever I rush outside and vomit. I find a bathroom and duck inside, only to find that it’s a squat toilet. I can barely stand I’m in so much pain, but somehow I shakily manage to position myself over this thing in what feels like an excruciating game of Twister. And by the way, the urge to pee is unbearable. I have to pee like I’ve never had to pee in my life. And the worst part is, I can’t. I want to so badly, but I can’t. Every time I try to sit down and fill out the “paperwork,” I jump up and start pacing. “I have to pee,” I keep saying. “I’m going to have an accident. I have to pee.” Nothing comes out. But I keep running to the bathroom anyway, because that’s what you do when you have to pee. Even when nothing happens, it’s instinctual. I just keep running back to the squat toilet and hovering over it and praying that something comes out, praying for just a tiny bit of relief. Nothing. I don’t know it at the time, but I have a kidney stone totally blocking my urethra. I squat over the squat toilet and retch while I’m trying to pee.
The squat toilet. It looked like this. Only not as clean.
Finally they grab me and take me back to a triage room and give me a little bowl to throw up into instead. They tell me I probably have a kidney stone and that I have to try to pass it on my own. They give me a water bottle. Great, I say, except I keep throwing up everything, and by the way, can you give me some painkillers or put me in a coma or something? Awesome. Finally – FINALLY – a doctor comes over and says they’re going to give me pain meds. I look at the clock. It’s been over THREE HOURS since I woke up in pain. They have to give me a shot in the “behind.” Oh you mean my ass? Awesome, here it is. I yank down my pants in a very un-ladylike way and wag my butt in the air desperately. “Uh … let me go grab the medicine first,” the doctor says, disturbed, and pulls back the triage curtain. Every person in the triage room turns and looks at my lily-white ass. I don’t even care.
About three and a half hours after I woke up in the worst pain of my life, I’m given pain meds, and it’s like a big bear hug from Jesus. I still have to pee badly, but the awful, white-hot, stabbing pain is gone so I’m delirious with glee. “I have to pee soooo bad, you guys,” I keep saying to my friends, who, like guardian angels, are fielding the questions from the nurses and helping me retch into my bucket. I keep trying to pee in the hospital bed I’m on because the bathroom is way far away and also because it’d be kind of funny. Still nothing is coming out. Every nurse that comes by wants to know if I’m a student. And what I’m studying. I keep making things up because WHO CARES. Can’t they see that I’m dying?
When was the last time you peed? The nurse asks me. Well, shit, if you put it that way … three days ago? I start to panic. How did I not realize this? Who doesn’t pee for three days and just figures that’s normal? The nurse clucks disapprovingly. It’s a kidney stone. We’ll have to catheterize you to get the urine out. She goes to get the supplies and another nurse.
Meanwhile: I call my dad.
“Dad?” I say, when the call goes through. “I’m in the hospital.”
Click. The connection drops. I try again.
“Hello?” My dad sounds gruff, concerned. “Sarah?”
“Dad, I’m in the hospital.”
Click. Cut off again.
I call my brother and finally get through. I tell him I’m in the hospital and the call drops out, AGAIN. There is no reception at all in the triage room. I can’t leave because the nurses need to cath me. I start to feel faint. I’m going to die of uremic poisoning three thousand miles from home and nobody will know. One of my friends takes the phone outside, finds reception, and calls my dad back. She calls my fiance. They’re concerned but ultimately can do nothing. I’m thousands of miles away. I don’t know it at the time, but my dad starts looking up flights to India.
The nurses start to cath me. Nothing. They try again. Nothing. They try a third time and still nothing comes out. It’s the stupid stone that’s blocking everything. They’re going to run some tests and admit me until I pass the stone, since I have a fever and they’re worried I might have some sort of infection.
Here’s something that’s hard to talk about, because I’m afraid it sounds too much like a privileged, first-world problem: The hospital was kind of shitty. There were cracks in the walls. Dirt on the floor. Not completely run-down, but nothing like you’d see in the States. The whole building and everything inside it looked like a relic from the 1930s — the IV drips were glass, instead of plastic. The paint on everything was chipped. Nobody wore gloves. There were puddles of water (I hope it was water) on the floor. There were no soaps in any of the bathrooms — and I peed in a lot of different bathrooms. For a long time, I was ashamed to tell this story, because the condition of the hospital was part of what was so traumatizing, and if that isn’t a First World problem, I don’t know what is. Like, wahhh, I went to a poor person hospital, I’m so traumatized! The thing is, all of these weird things in the hospital combined — the squat toilets, the no-soap, the no-gloves, the weird puddles on the floor — made it seem not-quite like a hospital. And cumulatively, it added to me feeling generally terrified and unsafe. I went in for an MRI and the technician was in jeans and a hoodie. Was he a doctor or just some dude off the street? None of the nurses wore gloves — didn’t these people know how bacteria was transmitted? Every nurse that came to see me asked if I had a fever. They never took my temperature — and to be honest I’m not sure if a thermometer existed in the whole hospital. I never saw one. Do you have a fever? They kept asking me. What’s your temperature? “I think so,” I kept saying. “Can’t you take my temperature?” Nobody did. They just kept asking. How qualified were these people? And not that speaking English is a good standard of care, by any means, but the fact that everyone had broken English made it even more terrifying. I didn’t know what was happening, and I couldn’t understand them when they tried to explain. I had no way of knowing. I just had to trust that I was in good hands. And I wasn’t so sure. It felt like a fever dream. Like a bad joke.
Anyway. I get an ultrasound (I had to pay for it first, of course). I get an MRI. I get some x-rays. Doctors are still asking me if I have a fever. I’ve stopped throwing up but I still can’t pee. They say if I don’t pee on my own, they’re going to admit me for surgery. I keep drinking and they keep running tests. They find a kidney stone on the x-ray and tell me to keep drinking water. I want to die I have to pee so bad. A few hours later, I haven’t peed, and they admit me. I pay an extra three thousand rupees for an air-conditioned room with an “English” toilet. They schedule surgery for that night. I’ve never had surgery in my life. For anything. I’ve never even had a cavity. I have no idea what anesthesia is like. I have no idea what to expect.
That night they prep me for surgery. A nurse comes in and shaves me with a single blade and a dingy cup of water and I decide that I’m going to get tetanus or hepatitis by the time I’m out of this hospital, if I don’t die of uremic poisoning first. Being naked in front of this stranger shames me, and tears leak out of my eyes as I stare up at the ceiling.
Why you cry? She asks, jostling me. You’re okay! Don’t cry! You’re fine!
I’m not crying, I say, wiping tears away. She keeps jostling me.
The nurses come in and take me down the hall. I beg them to put me under because I haven’t slept at all and hardly slept the night before. I’m exhausted and amped up on adrenaline. I’ve never been in surgery and I don’t want to be awake when they’re prodding me and cutting me open. Please just knock me out, I beg the nurse. He advises me not to use the phrase knock me out when I ask the anesthetician, but they agree to do it.
We are going to catheterize you and then insert the scope, the doctor says, and puts the gas mask over my face.
Gotta … buy me … dinner … first … I whisper, and fall asleep.